Many health departments do not have resources for a dedicated lupus program. This webpage provides information and tools you can use and share as appropriate. If you have a question about lupus or need technical assistance for a lupus initiative or marketing campaign, contact the Lupus Foundation of America at info@lupus.org.
National Public Health Agenda for Lupus
Find a Rheumatologist tool – American College of Rheumatology
Information packet for people diagnosed with lupus – (LFA)
Spread Awareness Year-Round Shareable Toolkit
Strategies to Embrace Living with Lupus Fearlessly Mobile App (LFA)
Resources for Health Care Professionals
Lupus-focused on-demand learning hub for community health workers – (LFA)
Systemic Lupus Erythematosus Treatment Guidelines (released May 2025)
All campaign materials and LFA assets below and at www.lupus.org are available for your use.
Pass along to health care providers, share with lupus patients, incorporate into a lupus-focused education initiative, enhance your next lupus awareness campaign, or communicate broadly. Please include proper acknowledgment to LFA.
Lupus Information Packet – Includes information on what to do if someone thinks they might have lupus, a worksheet to explain lupus to others, information on what to do if you are diagnosed with lupus and a symptom checklist.
LFA National Resource Center on Lupus – A collection of up-to-date resources and information on lupus. The NRCL allows for people with lupus to learn how the disease affects different aspects of their life. The living collection of information provides credible information from a trusted source.
Be Fierce. Take Control. Campaign – Part of the LFA’s ongoing commitment to increasing lupus awareness and reducing the time diagnosis for Black/African American and Hispanic/Latina women ages 18-25. If you have patients experiencing lupus symptoms they can learn more about what questions to ask, how to have a conversation with their healthcare provider and download a lupus symptom tracker.
RAY: Research Advocated by You – A lupus data platform where people with lupus and caregivers share information about their lupus experience to help researchers accelerate the development of new treatments and improve disease outcomes. Encourage your patients to join RAY and help lupus research.
Take Charge Email Series – A 12-week email series designed to introduce people with lupus to tips and resources that can help them better manage lupus and its everyday challenges.
LFA Expert Series – An educational podcast series featuring leading lupus experts with a focus on helping people with lupus live well. Lupus experts offer invaluable insight on a variety of important topics and provide listeners with the knowledge they need to better manage their lupus.
Ask A Health Educator – Available to help people with lupus find trustworthy information to answer questions about lupus and how to cope with it. They are specially trained to provide people affected by lupus with free non-medical support, disease education, information and helpful resources. Spanish speaking Health Education Specialists are available.
Find Support Near You – Provides a safe and understanding environment where people with lupus can come together to ask questions, listen to others or lend a helping hand. There are numerous support groups available throughout the United States, meeting virtually and/or in-person!
Lupus & You: Answers. Advocacy. Action. – A free educational series where people with lupus, their family and friends can learn more about the latest in lupus research and managing the disease.
Strategies to Embrace Living with Lupus Fearlessly (SELF) – A free mobile app that provides tailored support to people with lupus in managing symptoms, stress, medications and working with their health care team.
Inside Lupus Research – News from all the leading lupus research publications including peer-reviewed medical journals, public and private research centers, medical centers and government agencies.
Lupus Science & Medicine Journal – A peer-reviewed, open access, online journal that provides a central point for publication of basic, clinical, translational, and epidemiological studies of all aspects of lupus and related diseases.
Researcher Funding Opportunities – Research and grant opportunities available.
Professional Education – Medical education activities are available for both lupus specialists, primary care providers and nurses.
National Resource Center on Lupus (NRCL) resources
Speak to a Health Education Specialist
Tome Control – Spanish language lupus self-management campaign
Understanding Lupus (also available in Mandarin)
Diagnosing Lupus (also available in Mandarin)
Coping with Lupus (also available in Mandarin)
