NACDD and the Lupus Foundation of America, with funding from CDC, developed the first-ever National Public Health Agenda for Lupus 2015 — A Blueprint for Action
to prioritize a coordinated and multifaceted public health approach to lupus. The American College of Rheumatology, funded by CDC, collaborates with NACDD to develop sustainable strategies to support and build partnerships between State Health Departments and community-based organizations on lupus. Two community-based organizations were funded to implement select recommendations from state-based strategic plans.
The Big Bend Rural Health Network
has developed an effective partnership with the Florida Chronic Disease Director that includes a lupus subcommittee to the Chronic Disease Coalition, a lupus module in the 2019 BRFSS, and a compilation of hospital discharge and death data for addition to the Florida Charts website. Lupus Foundation of America/Georgia Chapter
also has built an effective partnership with the Georgia Chronic Disease Director that includes a lupus module in the 2019 BRFSS and a pilot telemedicine project that evaluated practitioner and patient attitudes about the use of telemedicine for a lupus consultation.
Both subcontractors have participated in a workgroup comprised of the ACR/The Lupus Initiative
, NACDD, and pediatric rheumatology fellows in a School Nurse Lupus Education and Training Program (Program) for school nurses. The Program includes a PowerPoint training on the signs and symptoms of lupus, how to implement a Lupus Care Plan for students with lupus and a Child to Adult Transition Care Plan. These documents may be found here
The University of Alabama
, Department of Community Medicine and Population Health/ Institute for Rural Health Research also have joined the program. We will be collecting data on the training experience as well as the intent of school nurses to implement the Care and Transition Plans.
Listen to the 2018 Lupus Awareness Month radio PSA